Throughout history, epilepsy has been a misunderstood condition and misperceptions, fears and stigma still exist within parts of our community today.
March is epilepsy awareness month and Purple Day on March 26 is a global initiative dedicated to raising epilepsy awareness.
Every year Epilepsy Action Australia works to bring the condition out of the shadows and increase awareness of the impact that this condition can have on individuals and families.
This year, for the first time ever, the Sydney Opera House will light up purple for Epilepsy Action Australia on the evening of Purple Day on March 26
Epilepsy Action Australia is aiming to raise $250,000 on Purple Day - one dollar for every person diagnosed with epilepsy in Australia - to go towards creating a range of cutting edge technology solutions and e-Resources.
"We are using the symbolism of 250,000 shades of purple this Purple Day to highlight that living with epilepsy is different for each of the 250,000 Australians diagnosed with the condition," Carol Ireland, CEO of Epilepsy Action Australia, said.
"What we hear every day from people with epilepsy, is a real desire to maintain as much control as possible whilst living with what can be a very out of control condition.
"Technology can be a real life-changer in this regard, for better communication, improved care and, ultimately, better quality of life."
For this reason, Epilepsy Action is committed to being at the forefront of cutting-edge solutions for managing epilepsy and putting the power at the fingertips of those living with the condition
"We are in the advanced stages of exploring a range of apps to assist with seizure management, telehealth and better clinical consultations with GPs and specialists," Ms Ireland said.
"What we desperately need is funds to go towards getting incredible resources off the ground and working to improve the lives of those living with epilepsy.
"We encourage the Australian public to get behind us in any way possible this Purple Day on March 26 to reach our $250,000 goal."
Ideas to raise funds for Purple Day include:
- Host your own fundraising event with a purple twist - a morning tea, a BBQ, a bake sale, a run, whatever you can think of!
- Get your school involved - hold a free dress day, sports day, sausage sizzle, or deliver Epilepsy Awareness presentations for K-2 or 3-6 in class.
- Buy merchandise such as t-shirts, hats and to show support and start conversations -
- Make a donation online.
For more information call 1300 37 45 37 or visit www.epilepsy.org.au.